It’s All About Me

It’s All About Me

 

all about me chronic chronicles

I thought it would be fun to do something a little different, and picked a random ‘getting to know me’ questionnaire.

1) Do you have a middle name? Yes.

2) What was your favourite subject in school? English, History and then later Politics, which I then did a degree in.

3) What’s your favourite drink? Diet Doctor Pepper, but I’m trying to give it up. I’m allergic to most squashes/juices, and don’t drink hot drinks. I’m trying to just drink water, but it’s difficult.  I’m doing quite well on my water-quest at the moment, but haven’t made the full leap.  I rely on the caffeine to wake me up.

4) Favourite song at the moment? I like Troye Sivan’s new song Happy Little Pill.

5) Summer or winter? Summer all the way.  I struggle in the heat, but it’s nothing compared to the pain of winter, and I despise snow.  Don’t get me wrong, the morning it snows and everything is clean and white is beautiful, but then it represents being trapped from going out, as I had a nasty fall once, and now I’m a total wimp about it, even in my wheelchair.  Plus the sun always improves my mood, and makes everything seem brighter.

6) Do you participate in any sports? No. I am looking forward to swimming as soon as I have a PA employed.

7) Favourite Book? I really like The Name of the Wind/The Wise Man’s Fear by Patrick Rothfuss, and I can’t wait for the final book in the trilogy to be released.

8) Favourite Colour? Raspberry pink.
pink
9) Favourite perfume? Anna Sui – Sui Dreams, but I believe it got discontinued this year sadly.

10) Favourite holiday? My mum and I went to the New Forest when I was about 18. I have a list of places I want to visit in the UK, and we managed to visit a number of them including Oxford, Bath, Bournemouth and Stonehenge, and I loved them all.  I can no longer drive for long periods, so holidays are very difficult.  Sometimes just a night away somewhere nearby is nice though.

11) Have you graduated High School? No, but I finished secondary school!  We don’t ‘graduate’ from that in the UK, it just comes to an end.

12) Have you been out of the Country? When I was 2 I went to Tenerife with my parents.  My first memory is from that holiday – watching a mother with two sons playing on a basketball game, and wanting to join in.  I’ve also been to France three times – twice on school trips, and once for a week for a holiday when I was 10.  I would love to travel more, but it’s so difficult now.  I still hope to, one day!

13) Do you speak any other Languages? Sadly not. I wish I could, but my French teacher wasn’t exactly inspiring and I had no aptitude for it, but I do believe we leave it much too late in the UK to introduce a second language. It should be started in primary school.

14) Favourite Animal? Cats – and I have three.

Button and Bailey

Button and Bailey

My little cat Pepper sleeping in a bead box.

My little cat Pepper sleeping in a bead box.

15) Do you have any siblings? No.

16) What’s your favourite store? No specific shop, but something crafty, or even better one that sells beads!  I generally hate shopping in actual shops though, but love online shopping!

17) Favourite Restaurant? I really like Old Orleans, although many of them have shut down. There is also a Chinese restaurant where I live that’s really nice.

18) Did you like school? No. My school was pretty dire, and I really struggled with it.  However, I believe it was the circumstances, and if my school had been better, with engaging teachers I would have enjoyed it, as I do like learning.  When I finally got to a better Sixth Form College taking subjects I wanted to, it was much better. I’m glad I got through both college and university though, as my health issues hit me badly between school an college.  Had it been any later in life, my health would probably have prevented it happening, and I’m so glad I was able to live away from home, and have that experience.

19) Are you mostly a clean or messy person? Horribly messy, I’m afraid. I manage to create mess no matter how hard I try.

20) Favourite Movie? It’s really hard to pick one, there are so many I like for different reasons. I really like The Green Mile, but there are probably much better picks I can’t think of at the moment.

21) Favourite TV show? Veronica Mars will always be at the top of the list.  There are many others I love though – Firefly, Breaking Bad, Battlestar Galactica, Dexter, etc.

22) PC or Mac? I’ve never actually used a Mac. I have nothing against them, but it would confuse the hell out of me to switch to one now.

23) What phone do you have? Google Nexus 4

24) How tall are you? 5″11

25) What do you order at Starbucks? I don’t drink coffee, and rarely drink tea. If I had to go into a Starbucks, I’d probably get a hot chocolate. I think I’ve been into a Starbucks once in my life, and only because it was the only place to go nearby.

26) One thing in your closet you cannot live without? I really struggle with most trousers, because I find the band really painful on my lower back. I live in thin PJ bottoms, and only change into something else if I’m going out/seeing someone. I can only put up with it for a short period of time, however.

27) What’s one thing most people probably don’t know about you? When I in Year 2 (about 7 years old) I accidentally stabbed myself in the hand with a pencil, and the lead broke off. You can still see the little piece of lead in my hand.  I’m hoping one day the magical powers contained within will activate.

28) Name one thing you want to do before you die… to be truly content.

29) What’s one food you cannot live without? I have a real weakness for crisps.

30) What quote/phrase do you live by? I like the phrase ‘Home is the nicest word there is.’ Home is always my sanctuary.

31) What’s your most listened to song on itunes? I don’t have iTunes, so I don’t know what the answer is. One album I go back to a lot is Mika’s, and the two songs I listen to most are Happy Endings, and Any Other World.

32) What kind of style would you define yourself as having? I don’t think I have a specific style, but I do like to colour coordinate and match my jewellery, shoes, clothes and walking stick together!

sticks 33) Favourite number? 7

34) Hobby? Jewellery making.

35) Two Pet Peeves? I really struggle with ‘noises’ – so someone who taps, or makes a loud noise when they eat, or plays around with things near them or coughs will drive me mad. And also people who don’t indicate when driving.

36) Guilty Pleasures? I watch a lot of guilty pleasure TV shows, such as Judge Judy, Dance Moms, Sister Wives, etc.

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New Wheelchair!

New Wheelchair!

Some members of my family have very kindly clubbed together to buy me an electric wheelchair. It took quite some time to find one that came apart to go in the car, that my mum could lift alone, and was in our price range but we finally found one.

The batteries slide out and it then folds two ways to make it smaller. It’s supposed to be arriving tomorrow evening and I’m very excited! It is a fantastic feeling – having choice over where you can go and not the horrible feeling of guilt you get when someone has to push you.

Hopefully Debbie at Glamsticks will be able to bling it up for me as beautifully as she does my sticks.

Speaking of, I spent some of my birthday money on my fourth stick which is going to be shades of ocean blues.

English: Controller of electric-powered wheelc...

Controller of electric-powered wheelchair Belize. (Photo credit: Wikipedia)

Glamming up Walking Sticks

Glamming up Walking Sticks

I should have got a mobility aid a lot sooner than I did. I couldn’t possibly have one, I thought – I’m much too young. One day I went out on a family outing and they decided to go for a long walk. Oh no, I thought.  I tried desperately to keep up – my lovely mum trying to hold me upright as the pain increased. I was hobbling along, having to sit on every bench going. The car was now long behind, so I was stuck. I think that was the day my grandad saw how bad I was getting, when he, then in his late 80s could easily out walk me. When we got back he took me straight into a shop to buy my first mobility stick. The choice was an old fashioned floral pattern, or copper. I picked the copper one, but it wasn’t really me.

The stick made a difference – when I reached my saturation point of pain it helped to lean on, and when I was dizzy (quite often) and clumsy (very often) it helped to keep me on my feet.

I then stumbled across a website called Glamsticks where there were rows and rows of beautiful handcrafted sticks.  They started from about £20 for a light-weight handpainted one, and went up to about £55 for fully-covered diamante, glitter and more!  My first stick I picked was a multicoloured diamante folding walking stick. It was bright, cheerful and didn’t scream disabled. I got stopped constantly to compliment it.

glam3
But fickle me wanted more! My next stick was my own design (well, with a lot of help from the lovely owner of Glamsticks!) It was sprayed a pinky-gold, with butterflies and fairies outlined in pink gemstones and glitter. It’s incredibly girly and ever-so-pretty.

glam2

glam1

 But two sticks just isn’t enough! My winter coat was purple, and I needed something to match it. So my next stick was silver with prple swirls all over it. Lovely!

So that gives me three, but which do I pick in summer when I wear a lot of white and blue? I’m saving up for my fourth and probably final stick, which I’d like in shades of ocean blues.

Walking sticks don’t have to be NHS grey any more, but can be fashion statements in their own right. I want a stick that says something about me, and glitter and gemstones are perfect.

Perhaps four aren’t enough. What about one for every day of the week? Well, I’ll give it a go!