Keep on, Keepin’ on

I have a job interview next week, which involves a presentation (eek!).  My work situation at the moment is dire, and this job seems perfect for me.  I could have written the description myself.  It involves planning a new service for older and disabled people – something I’ve been focusing on for some time in my current job and at Fair Access.  I’ve spent weeks planning out and writing my presentation over and over.  I have to map out how I’d carry out the project, my plan for sustainability and all my ideas.

http://www.dreamstime.com/stock-photo-businesswoman-presentation-image13796100

But I’m due back to work next week, and both parts of the interview are on days I have to work (although luckily in the morning, when I’m due in at work in the afternoon.)

I’m dreading going back, it makes me feel sick.  My employer hates me, and makes it obvious at every turn – because when they try and do something impacting my condition I don’t just say yes.

I’m fighting a battle with my local hospital as well.  I’ve asked them to look into my lower back issues – as most other people with the same conditions I do, don’t have the same issues with walking that I do.  Don’t get me wrong, people with Ehlers-Danlos or Fibromyalgia frequently feel pain on walking, or exhausted – but generally don’t have that strict oh my god the pain cut off point.  There is an underlying issue there.  My MRI (that took seven years of begging to get a) a couple of years ago showed some degenerative facet joints and arthritis, but both at a moderate level.  At that point I could walk about 15-20 minutes.  I can now stand for less than a minute.  So my GP and I thought it very reasonable for them to look into it, maybe look at some treatment options (usually injections).  But after a very dismissive assessment, they discharged me.   I put in a complaint, and I got back the most ridiculous letter, once again dismissing me.  So I need to keep battling them.

And finally, for a few days there seemed to be a bit less pain in my lower back, and thought it might be improving a little.  And then it decided to say haha, you’re funny, and has been on fire for three days straight.  I mean it always hurts, but this is just ridiculous.

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