May News Round-Up

I had so many plans for May – which is Ehlers-Danlos Syndrome awareness month, and it’s just all gone by in a flash of bad health, hospital appointments and glass making. Fused glass making is a new hobby I’ve got into, and I’m really enjoying... read more

A Love Worth Giving Kickstarter

Having written about organ donation in The Huffington Post in February, I was contacted by the makers of a new documentary called A Love Worth Giving to ask if I would help to spread the word about their Kickstarter campaign. The documentary follows a newly married... read more

An Open Letter to Ford

Dear Ford Foray Dealership in Taunton Nine months ago my friend started the process to get a car on the Motability scheme.  A Ford C-Max – which has a fabulously tall boot which is perfect for fitting the hoist in for her wheelchair. Her current car is much... read more

Mini Pain Relief Accessory Haul

Got some new goodies this week! It’s sad when you get excited about a new pill holder, but there you are!  I really like the colours, and the amount of boxes there are to split things up.  Sometimes I find I don’t take things as often as I could, which... read more

Self-Compassion in Chronic Illness

Today is 1000 Voices for Compassion, where bloggers, writers, artists, or anyone, have been asked to create something on the subject of compassion.  You will be able to see all the amazing content being released on the 1000 Voices blog or on twitter using the hashtag... read more

Give your heart this Valentine’s Day

I remember signing up to be an Organ Donor. They used to have those little credit-card sized cards you filled in, and kept in your purse. I went through each organ and ticked or denied permission depending on how ‘weird’ it felt. Later I realised I was... read more

About Me

Hi, I'm Jade. I'm 27 years old, and live in the UK. I have multiple chronic illnesses including Ehlers-Danlos Syndrome and Fibromyalgia, and this blog is about finding hope amongst the frustrations. You can contact me at:

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